
The case study consists in a series of semi-structured interviews, audio-recorded, transcribed, and analysed thematically. Participants are people with dementia living at home or in residential care facilities. The purpose of the interviews is to investigate the presence of epistemic injustice and the effect it has on the daily lives and well-being of participants with a focus on the relationships with healthcare professionals and caregivers. We aim to have a better understanding of how epistemic injustice affects older adults with a dementia diagnosis and develop recommendations for improving social inclusion and care.
Team
Recruitment
Older adults with dementia diagnosis (moderate cognitive decline). Recruited from Residential Home L’Aquilone (Savignano), Alzheimer Association (Imola), and Cognitive Disorders and Dementia Center of Local Health Authority (Bologna). Special thanks to Stefania Martinelli (L'Aquilone) and Elisa Ferriani (AUSL Bologna) for their assistance with recruitment.
Relevant publications
Presentations
Scoping Review
Calabrese, L., Brigiano, M., Quartarone, M., Chirico, I., Trolese, S., Lambiase, F., Forte, L., Annini, A., Bortolotti, L., & Chattat, R. (2025). I'm still here and my opinion matters: a scoping review on the experience of epistemic injustice among people living with dementia.
Current psychology 45(1), s12144-025-08519-y.
Epistemic Injustice and Living with Dementia
In this video we summarise some of our findings from qualitative work on instances of exclusion, objectification, and invalidation reported by people living with dementia.
This project was generously funded by wellcome. Grant : [226603/Z/22/Z], 'EPIC: Epistemic Injustice in Health Care'.