The case study consists in a series of semi-structured interviews, audio-recorded, transcribed, and analysed thematically. Participants are people with dementia living at home or in residential care facilities. The purpose of the interviews is to investigate the presence of epistemic injustice and the effect it has on the daily lives and well-being of participants with a focus on the relationships with healthcare professionals and caregivers. We aim to have a better understanding of how epistemic injustice affects older adults with a dementia diagnosis and develop recommendations for improving social inclusion and care.
Team
Data collection and analysis: Lara Calabrese (University of Bologna). EPIC Project investigator: Lisa Bortolotti (University of Birmingham and University of Ferrara)
EPIC Project Partners: Rabih Chattat, Department of Psychology, University of Bologna; Elisabetta Lalumera, Department for Life Quality Studies, University of Bologna.
Recruitment
Older adults with dementia diagnosis (moderate cognitive decline). Recruited from Residential Home L’Aquilone (Savignano), Alzheimer Association (Imola), and Cognitive Disorders and Dementia Center of Local Health Authority (Bologna).
Relevant publications
Presentations
This project was generously funded by wellcome. Grant : [226603/Z/22/Z], 'EPIC: Epistemic Injustice in Health Care'.